Getting Social Security Disability or SSI can be difficult when you have Fibromyalgia. Some people are able to get one or the other in a matter of months. Others have worked on it for years and still are having trouble getting anywhere.
There are some tips I have learned while applying for Social Security for my children for othere reasons than Fibromyalgia and friends who did have Fibromyalgia. One of the first tips is to keep records of everything. I kept notebooks with documents with penciled in dates at the bottom right. If anyone ever needed proof of anything I usually had doctor notes, letters, prescription receipts, reports or something.
We kept all doctor appointments. Even when what is now adults are not cooperating and taking medication on a regular basis, we still kept all appointments. We had developed and still have a history of seeking medical assistance and advice on a regular basis. I am sure you will see that along the way you will acquire several more diagnoses. We certainly did.
All of what might seem to be extra information is important. Although many of us, including myself, have Fibromyalgia as a primary diagnosis the other information is important in making our case with Social Security. If a doctor suggested I check with another professional about one thing or another I did. I also kept records of that too.
Even with all of this families I have helped have sometimes had to appeal Social Security’s decision several times. People do not always realize this is the process when first dealing with Social Security. Many families get the first denial letter and stop. Particularly when reading that they can appeal if they have additional information.
Since we are going to doctors or waiting to go to doctors we may not have additional information right at that second. Later during the appeal though we might and probably will. I recommend my friends and family appeal even if they do not have possession of more information then.
At some point in the process of appealing it may be necessary to engage the services of a representative or an attorney. I usually work with someone to appeal once or twice first. But at some point help may be needed. The representative or attorney usually works for a percentage of what you will receive in back payments.
For example if you have Fibromyalgia you might apply for Social Security Disability or SSI in February. After appealing once or twice it might be October or November. If you engage an attorney he or she might be successful in December.
He or she would then get a percentage of all the back payments you will receive. This is back payments from back in February all the way to December. This is a very simple example but it gives you a basic understanding of the process.