Jorge Posada may be known to most as the catcher for the New York Yankees, but to a smaller group he is known as a crusader for research and treatment for a condition called craniosynostosis.
This condition occurs when the sutures in the cranium become fused. In a normal infant, these suture areas are separated, and do not become fused until much later in life. In infants with craniosynostosis, the fusion of the bones in the cranium can lead to severe brain damage, seizures, and even death. Craniofacial deformities are also a common side effect of this condition. A child may have a noticeably misshapen skull, or the facial features may seem off-center, or crooked. For many children, many reconstructive surgeries are required even after the condition itself has been corrected. According to the Jorge Posada Foundation website, this condition affects 1 in every 2,000 births.
Jorge Posada’s son, Jorge Jr. was diagnosed with the condition as an infant. He underwent eight surgeries before he was a year old to correct the condition. The Posadas wrote a book chronicling their experience, entitled The Beauty of Love. They also started their own charity centered around craniosynostosis.
The Jorge Posada foundation raises money and awareness for craniosynostosis. They also have a mentoring program where people who have experienced craniosynostosis firsthand can offer help and hope to those currently struggling with the condition. Through the mentoring program, parents can see that it is possible for their children to live completely normal lives. For many years, there were very few resources that families dealing with craniosynostosis could use. The Posadas have filled a void for so many people.
Jorge Posada is not just a star on the New York Yankees roster, he is a hero for children and parents everywhere. To learn more about craniosynostosis and how you can help, visit the Jorge Posada Foundation website at www.jorgeposadafoundation.org.