Usually when living with a disease, most live by a clock to take medicine. With Irritable Bowel Syndrome I live by my proximity to a bathroom. I have been diagnosed with a severe case and it does not respond to any medicine. This disease has interrupted my life in many ways. It is different for every sufferer.
My family tries to understand, but a wound that can not be seen, can not be understood. I have good days where I feel normal and then really bad days. Those bad days, in my case, seem to be more frequent. I don’t even want to get out of bed; I am in so much pain. On my in between days, I just make sure that I know where every bathroom is.
I am a very active person, but cannot be now. I do not have the ability to enjoy the activities I once did. Depression often takes over when my children want to do things like, play ball, go for hikes or swimming and I just can’t join the fun. I have found I am growing into a hermit because I am afraid to venture out and have an accident.
Irritable Bowel Syndrome does not have a rhyme or reason. I have tried diet changes, exercise, herbal, medicines, you name it. I have to make sure I know where all bathrooms are and I usually make sure I have a change of clothes. Yes, the most embarrassing has happened.
The disease causes irrational bowel habits; excessive gas that literally makes me feel like I will explode, or a sudden urge to have a bowel movement that can not be ignored. I have been in such pain that I thought my appendix ruptured and every test done still finds nothing abnormal. I have had two colonoscopies and both revealed some form of colitis and the first one showed a colon full of ulcers the whole length.
It is scary and frustrating. I want my old life back and know it is no where to be found. There is no cure and for me no relief. Learning how to cope with Irritable Bowel Syndrome has been the hardest task of all. I am just not willing to accept that this won’t get better. My biggest wish is that someday a cure will be found and for all of those out there that suffer from IBS, I understand your pain.